{"id":4423,"date":"2024-09-05T11:04:18","date_gmt":"2024-09-05T10:04:18","guid":{"rendered":"https:\/\/www.forethoughtmed.com\/?p=4423"},"modified":"2024-10-12T10:52:45","modified_gmt":"2024-10-12T09:52:45","slug":"indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai","status":"publish","type":"post","link":"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/","title":{"rendered":"\u5e0c\u5c11\u75be\u60a3\u3068\u8a3a\u65ad\u3055\u308c\u305f\u30a4\u30f3\u30c9\u4eba\u5c11\u5e74\u3001\u4e0a\u6d77\u3067\u306e\u8907\u96d1\u306a\u624b\u8853\u306724\u30bb\u30f3\u30c1\u6210\u9577"},"content":{"rendered":"<figure class=\"wp-block-video\"><video height=\"850\" style=\"aspect-ratio: 478 \/ 850;\" width=\"478\" controls src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/WeChat_20240905180509.mp4\"><\/video><\/figure><p>In a remarkable medical achievement, a young boy from India suffering from a rare autoimmune disorder and severe scoliosis was successfully treated at Shanghai Xinhua Hospital after being turned away by multiple hospitals across the globe. This case highlights China\u2019s leading role in treating complex scoliosis cases and managing rare diseases, particularly through innovative spinal correction techniques. At <strong>\u30d5\u30a9\u30a2\u30bd\u30fc\u30c8\u30fb\u30e1\u30c7\u30a3\u30ab\u30eb<\/strong>, we recognize the critical role advanced medical devices and comprehensive treatment approaches play in such complex conditions, and we aim to contribute to these medical advancements through our specialized scoliosis devices.<\/p><figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"599\" height=\"800\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5-599x800.jpg\" alt=\"\" class=\"wp-image-4427\" srcset=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5-599x800.jpg 599w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5-300x400.jpg 300w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5-768x1025.jpg 768w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5-1151x1536.jpg 1151w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5-1000x1335.jpg 1000w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic5.jpg 1278w\" sizes=\"(max-width: 599px) 100vw, 599px\" \/><\/figure><div id=\"ez-toc-container\" class=\"ez-toc-v2_0_74 counter-hierarchy ez-toc-counter ez-toc-light-blue ez-toc-container-direction\">\n<div class=\"ez-toc-title-container\">\n<p class=\"ez-toc-title\" style=\"cursor:inherit\">\u76ee\u6b21<\/p>\n<span class=\"ez-toc-title-toggle\"><a href=\"#\" class=\"ez-toc-pull-right ez-toc-btn ez-toc-btn-xs ez-toc-btn-default ez-toc-toggle\" aria-label=\"\u30c8\u30b0\u30eb\u76ee\u6b21\"><span class=\"ez-toc-js-icon-con\"><span class=\"\"><span class=\"eztoc-hide\" style=\"display:none;\">\u30c8\u30b0\u30eb<\/span><span class=\"ez-toc-icon-toggle-span\"><svg style=\"fill: #999;color:#999\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" class=\"list-377408\" width=\"20px\" height=\"20px\" viewbox=\"0 0 24 24\" fill=\"none\"><path d=\"M6 6H4v2h2V6zm14 0H8v2h12V6zM4 11h2v2H4v-2zm16 0H8v2h12v-2zM4 16h2v2H4v-2zm16 0H8v2h12v-2z\" fill=\"currentColor\"><\/path><\/svg><svg style=\"fill: #999;color:#999\" class=\"arrow-unsorted-368013\" xmlns=\"http:\/\/www.w3.org\/2000\/svg\" width=\"10px\" height=\"10px\" viewbox=\"0 0 24 24\" version=\"1.2\" baseprofile=\"tiny\"><path d=\"M18.2 9.3l-6.2-6.3-6.2 6.3c-.2.2-.3.4-.3.7s.1.5.3.7c.2.2.4.3.7.3h11c.3 0 .5-.1.7-.3.2-.2.3-.5.3-.7s-.1-.5-.3-.7zM5.8 14.7l6.2 6.3 6.2-6.3c.2-.2.3-.5.3-.7s-.1-.5-.3-.7c-.2-.2-.4-.3-.7-.3h-11c-.3 0-.5.1-.7.3-.2.2-.3.5-.3.7s.1.5.3.7z\"\/><\/svg><\/span><\/span><\/span><\/a><\/span><\/div>\n<nav><ul class='ez-toc-list ez-toc-list-level-1' ><li class='ez-toc-page-1 ez-toc-heading-level-3'><a class=\"ez-toc-link ez-toc-heading-1\" href=\"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/#A_Boys_Journey_Through_Global_Medical_Systems\" >A Boy\u2019s Journey Through Global Medical Systems<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-3'><a class=\"ez-toc-link ez-toc-heading-2\" href=\"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/#Understanding_the_Complexities_PERM_and_Scoliosis\" >Understanding the Complexities: PERM and Scoliosis<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-3'><a class=\"ez-toc-link ez-toc-heading-3\" href=\"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/#Shanghais_Multidisciplinary_Approach_to_Complex_Scoliosis\" >Shanghai\u2019s Multidisciplinary Approach to Complex Scoliosis<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-3'><a class=\"ez-toc-link ez-toc-heading-4\" href=\"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/#Implications_for_Scoliosis_Device_Innovation\" >Implications for Scoliosis Device Innovation<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-3'><a class=\"ez-toc-link ez-toc-heading-5\" href=\"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/#Why_Early_Detection_and_Intervention_Matter\" >Why Early Detection and Intervention Matter<\/a><\/li><li class='ez-toc-page-1 ez-toc-heading-level-3'><a class=\"ez-toc-link ez-toc-heading-6\" href=\"http:\/\/www.forethoughtmed.com\/ja\/indian-boy-diagnosed-with-rare-disease-grows-24-cm-after-complex-surgery-in-shanghai\/#Conclusion\" >\u7d50\u8ad6<\/a><\/li><\/ul><\/nav><\/div>\n<h3 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"A_Boys_Journey_Through_Global_Medical_Systems\"><\/span>A Boy\u2019s Journey Through Global Medical Systems<span class=\"ez-toc-section-end\"><\/span><\/h3><p>The patient, known as Xiao Bao, faced severe health challenges since 2020. At just 10 years old, he experienced tremors, heightened muscle tone, and extreme sensitivity to touch, particularly in his chest area. Over the span of three years, his spine developed a 162-degree curvature, leaving him with significant breathing and mobility difficulties. As his health worsened, Xiao Bao and his family sought treatment in multiple countries, including India, the UK, the US, and Singapore. However, no hospital was willing to take on his case due to the complexities and risks involved, including potential complications from his rare autoimmune condition, PERM (Progressive Encephalomyelitis with Rigidity and Myoclonus), and the severity of his scoliosis.<\/p><h3 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Understanding_the_Complexities_PERM_and_Scoliosis\"><\/span>Understanding the Complexities: PERM and Scoliosis<span class=\"ez-toc-section-end\"><\/span><\/h3><p>Xiao Bao was diagnosed with PERM, a rare and severe subtype of Stiff-Person Syndrome (SPS). This condition is characterized by muscle rigidity and painful spasms, often triggered by external stimuli like touch. PERM is extremely rare, with less than 100 cases reported worldwide, complicating treatment due to a lack of standardized protocols. Xiao Bao\u2019s condition was further aggravated by long-term steroid use and physical inactivity, leading to osteoporosis, which made spinal surgery even more risky.<\/p><p>His spinal curvature reached 162 degrees, severely compressing his lungs and heart, further complicating his condition. Without treatment, Xiao Bao&#8217;s prognosis was poor, as his scoliosis and PERM continued to worsen.<\/p><figure class=\"wp-block-image size-full\"><img decoding=\"async\" width=\"573\" height=\"400\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/08\/c-and-s-scoliosis.jpg\" alt=\"\" class=\"wp-image-4420\"\/><\/figure><h3 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Shanghais_Multidisciplinary_Approach_to_Complex_Scoliosis\"><\/span>Shanghai\u2019s Multidisciplinary Approach to Complex Scoliosis<span class=\"ez-toc-section-end\"><\/span><\/h3><p>Despite the enormous challenges, Professor Yang Junlin and his team at Shanghai Xinhua Hospital took on Xiao Bao\u2019s case, recognizing the need for a comprehensive, multidisciplinary approach. The team decided on a staged treatment plan, beginning with head-to-pelvis ring traction, a unique technique developed by Chinese scholars. This method allowed for partial correction of his spine over several months, reducing the curvature to 97 degrees and significantly improving his heart and lung function, making him eligible for surgery.<\/p><p>The final surgery was complex, requiring precision spinal fusion and osteotomy to correct his spine. Despite significant risks of bleeding and other complications, the surgery was successful, correcting the curvature from 162 degrees to 38 degrees. Post-surgery, Xiao Bao\u2019s height increased by 24 centimeters, and his overall health improved dramatically, with restored respiratory function and a more balanced torso.<\/p><figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"599\" height=\"800\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1-599x800.jpg\" alt=\"\" class=\"wp-image-4428\" srcset=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1-599x800.jpg 599w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1-300x400.jpg 300w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1-768x1025.jpg 768w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1-1151x1536.jpg 1151w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1-1000x1335.jpg 1000w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic1.jpg 1278w\" sizes=\"(max-width: 599px) 100vw, 599px\" \/><\/figure><figure class=\"wp-block-image size-full is-resized\"><img decoding=\"async\" width=\"430\" height=\"295\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/071130_optimized.png\" alt=\"\u5e0c\u5c11\u75be\u60a3\u3068\u8a3a\u65ad\u3055\u308c\u305f\u30a4\u30f3\u30c9\u4eba\u5c11\u5e74\u3001\u4e0a\u6d77\u3067\u306e\u8907\u96d1\u306a\u624b\u8853\u306724\u30bb\u30f3\u30c1\u6210\u9577\" class=\"wp-image-6064\" style=\"width:601px;height:auto\" srcset=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/071130_optimized.png 430w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/071130_optimized-18x12.png 18w\" sizes=\"(max-width: 430px) 100vw, 430px\" \/><\/figure><h3 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Implications_for_Scoliosis_Device_Innovation\"><\/span>Implications for Scoliosis Device Innovation<span class=\"ez-toc-section-end\"><\/span><\/h3><p>The successful treatment of Xiao Bao\u2019s scoliosis, especially when compounded by a rare autoimmune disease, underscores the importance of specialized scoliosis devices and equipment. At <strong>\u30d5\u30a9\u30a2\u30bd\u30fc\u30c8\u30fb\u30e1\u30c7\u30a3\u30ab\u30eb<\/strong>, we focus on providing advanced medical devices tailored to the needs of complex scoliosis cases, including solutions for patients with conditions like PERM that complicate traditional treatment methods.<\/p><p>For example, spinal braces designed to accommodate severe curvatures, innovative traction systems, and osteotomy tools can significantly improve the outcomes of patients facing extreme scoliosis, as demonstrated in Xiao Bao\u2019s case. Additionally, our devices are designed with a focus on improving patient outcomes, enhancing recovery times, and offering long-term stability post-surgery, even in cases with underlying conditions like osteoporosis.<\/p><figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"599\" height=\"800\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3-599x800.jpg\" alt=\"\" class=\"wp-image-4425\" srcset=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3-599x800.jpg 599w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3-300x400.jpg 300w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3-768x1025.jpg 768w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3-1151x1536.jpg 1151w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3-1000x1335.jpg 1000w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic3.jpg 1278w\" sizes=\"(max-width: 599px) 100vw, 599px\" \/><\/figure><h3 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Why_Early_Detection_and_Intervention_Matter\"><\/span>Why Early Detection and Intervention Matter<span class=\"ez-toc-section-end\"><\/span><\/h3><p>As shown in Xiao Bao\u2019s case, early detection and intervention are crucial in treating scoliosis, especially in pediatric patients. At <strong>\u30d5\u30a9\u30a2\u30bd\u30fc\u30c8\u30fb\u30e1\u30c7\u30a3\u30ab\u30eb<\/strong>, we advocate for early scoliosis screening and the use of advanced diagnostic tools that can detect spinal deformities at an earlier stage. This allows for more conservative treatment options and better long-term outcomes.<\/p><p>Parents should be vigilant in noticing signs like uneven shoulders or back pain in their children, as these could be early indicators of scoliosis. The earlier scoliosis is detected, the more options are available for non-invasive treatments, such as bracing and physical therapy, which can prevent the condition from worsening and potentially eliminate the need for surgery altogether.<\/p><figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"599\" height=\"800\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2-599x800.jpg\" alt=\"\" class=\"wp-image-4429\" srcset=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2-599x800.jpg 599w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2-300x400.jpg 300w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2-768x1025.jpg 768w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2-1151x1536.jpg 1151w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2-1000x1335.jpg 1000w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic2.jpg 1278w\" sizes=\"(max-width: 599px) 100vw, 599px\" \/><\/figure><h3 class=\"wp-block-heading\"><span class=\"ez-toc-section\" id=\"Conclusion\"><\/span>\u7d50\u8ad6<span class=\"ez-toc-section-end\"><\/span><\/h3><p>Xiao Bao\u2019s journey from facing rejection by global medical institutions to undergoing successful spinal correction surgery in Shanghai highlights the strides being made in scoliosis treatment. His case serves as a reminder of the importance of innovation in medical devices, particularly for rare and complex conditions like PERM-associated scoliosis. At <strong>\u30d5\u30a9\u30a2\u30bd\u30fc\u30c8\u30fb\u30e1\u30c7\u30a3\u30ab\u30eb<\/strong>, we remain committed to developing advanced solutions for scoliosis care, enabling patients to access life-changing treatments and achieve better outcomes.<\/p><p>For more information on our scoliosis medical devices, visit <a href=\"https:\/\/www.forethoughtmed.com\/ja\/\"><strong>\u30d5\u30a9\u30a2\u30bd\u30fc\u30c8\u30fb\u30e1\u30c7\u30a3\u30ab\u30eb<\/strong><\/a>.<\/p><figure class=\"wp-block-image size-large\"><img decoding=\"async\" width=\"600\" height=\"800\" src=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4-600x800.jpg\" alt=\"\" class=\"wp-image-4426\" srcset=\"http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4-600x800.jpg 600w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4-300x400.jpg 300w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4-768x1024.jpg 768w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4-1152x1536.jpg 1152w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4-1000x1333.jpg 1000w, http:\/\/www.forethoughtmed.com\/wp-content\/uploads\/2024\/09\/forethought-pic4.jpg 1280w\" sizes=\"(max-width: 600px) 100vw, 600px\" \/><\/figure><h4 class=\"wp-block-heading\">\u53c2\u8003\u6587\u732e<\/h4><ol class=\"wp-block-list\"><li>Stiff-person syndrome with PERM: A case report. Chinese Journal of Neurology. doi:10.3760\/cma.j.cn113694-20230111-000212<\/li>\n\n<li>Advances in SMA Treatment Research. Chinese Journal of Contemporary Pediatrics. doi:10.7499\/j.issn.1008-8830.2110041<\/li><\/ol><p>This combined rewrite links the original medical report to the mission and products of <strong>\u30d5\u30a9\u30a2\u30bd\u30fc\u30c8\u30fb\u30e1\u30c7\u30a3\u30ab\u30eb<\/strong>, focusing on innovation in scoliosis treatment devices.<\/p>","protected":false},"excerpt":{"rendered":"<p>In a remarkable medical achievement, a young boy from India suffering from a rare autoimmune disorder and severe scoliosis was successfully treated at Shanghai Xinhua Hospital after being turned away by multiple hospitals across the globe. This case highlights China\u2019s leading role in treating complex scoliosis cases and managing rare diseases, particularly through innovative spinal correction techniques. At Forethought Medical, we recognize the critical role advanced medical devices and comprehensive treatment approaches play in such complex conditions, and we aim to contribute to these medical advancements through our specialized scoliosis devices. A Boy\u2019s Journey Through Global Medical Systems The patient, known as Xiao Bao, faced severe health challenges since 2020. [&#8230;]","protected":false},"author":5,"featured_media":6064,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[1,87],"tags":[],"class_list":["post-4423","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-blog","category-news"],"_links":{"self":[{"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/posts\/4423","targetHints":{"allow":["GET"]}}],"collection":[{"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/users\/5"}],"replies":[{"embeddable":true,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/comments?post=4423"}],"version-history":[{"count":4,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/posts\/4423\/revisions"}],"predecessor-version":[{"id":6065,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/posts\/4423\/revisions\/6065"}],"wp:featuredmedia":[{"embeddable":true,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/media\/6064"}],"wp:attachment":[{"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/media?parent=4423"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/categories?post=4423"},{"taxonomy":"post_tag","embeddable":true,"href":"http:\/\/www.forethoughtmed.com\/ja\/wp-json\/wp\/v2\/tags?post=4423"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}